Doctor Speedy and ME
in search of medical honesty
For those who want to co-sign this letter:Chair of APPG Inquiry into NHS Service ProvisionC/O Dr Des Turner's officeHouse Of commonsLondonSW1A 0AADear Chair,We feel it important to bring to your attention the statement below. We =would also like you to note the events that took place which led to the =statement being drawn up, and the subsequent support it received from =approximately five hundred members of the ME community, despite the =limited time scale available. Although almost two years has now passed, =the same concerns mentioned within the statement are still very evident: =It is clear to us from the feedback we receive that many members of the =ME community remain unhappy at the lack of decent critical appraisal =from within Westminster regarding the setting up and continuation of the =controversial NHS CFS/ME clinics; and also there is a belief that any =Inquiry undertaken in the present climate will further endorse the =psychosocial approach currently favoured as best practice.Yours sincerelyAngela KennedyIan McLachlan?A Need of Accountability and a Firm ResolutionFollowing the events of the APPG meeting of July 12th, and the official =minutes that followed, it has become clear that there is a high amount =of dissatisfaction with or objection to the approaches of the majority =of the NHS 'CFS/ME' clinics amongst the ME/CFS community, and that this =fact was not properly recognised at the APPG meeting for a number of =reasons. Ian and I feel that if the objections people have to these =clinics are prevented from being aired and formally acknowledged, the =current situation, by which the only 'treatments' being offered by the =clinics are those psycho-social in nature, with serious physiological =impairments being trivialised and/or ignored, is likely to become more =and more entrenched as 'best practice', with disastrous results for the =community on an individual and collective basis. With this in mind, it =is proposed that a formal statement is delivered to the APPG, (both as =written communication to the chair, and as an oral statement read out at =the next APPG meeting under 'Any Other Business) to register objections =to this state of affairs. We feel it vital that people who share the =same concerns should be given an opportunity to become co-signatories to =the statement if they wish.The statement will be as follows:STATEMENT TO THE APPG"We are a group of individual people suffering from or closely connected =to someone suffering from Myalgic Encephalomyelitis, also known as =Chronic Fatigue Syndrome; an illness classified as neurological by the =World Health Organisations ICD-10 under code G93.3.We advise the APPG today of the following:From the evidence available, it has become apparent that the majority of =NHS 'CFS/ME' clinics do not adopt a suitably biomedical approach towards =M.E. sufferers. Instead, these clinics inappropriately focus on a =Cognitive Behavioural Therapy approach, some combined with Graded =Exercise Therapy approaches, neither of which has been shown to be =effective treatments for M.E. sufferers, and for which there is evidence =of potential risk to patients from both treatments.We advise you that, by not focusing on a biomedical approach to =diagnosis and treatment/support, and by focusing on controversial =psycho-social treatments, such clinics are causing M.E. sufferers to be =put at risk, both physically and psychologically. We therefore feel the =approaches of these clinics are inappropriate for M.E patients.In addition we remind the APPG of its duty to safeguard the interest of =ME sufferers, and ask that it immediately clarifies its ambiguous =position of supporting the setting up and continuation of the CFS/ME =clinics - especially as that support is also being given on the =extremely vague pretext that they are 'a base to build from', despite =all evidence to the contrary. We also remind the APPG that their remit =is to support, only the WHO code G93.3 of ME/CFS, and therefore believe =an unequivocal position of insistence on only a biomedical approach =should have been taken from the outset.We trust that the APPG will now acknowledge that there are, within the =ME/CFS community, serious concerns about and objections to the =approaches of the majority of the NHS 'CFS/ME' clinics, and have this =formally entered in the minutes."=20STATEMENT ENDSUnlike other petitions that might be more generalised, this is a =single-issue campaign. The bottom line is, if, from the evidence =available, you have come to the conclusion that THE MAJORITY of NHS ='CFS/ME' clinics are inappropriately focusing on a psycho-social CBT/GET =approach, and LACKING in a very necessary biomedical approach to the =illness Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome WHO ICD 10 =393.3, and you wish to register your objection to this situation =formally to the APPG, then by putting your name as co-signatory to this =statement, you are registering your objection to this situation only.The purpose of this statement is to ensure that the APPG formally =recognise that there are many people who DO object to the current =approach of the majority of the NHS clinics, a situation implicitly =denied in the minutes of the APPG meeting of July 12th, and are formally =reminded of their duties to safeguard the interests of ME/CFS sufferers, =in acknowledging the objections formally. Your agreement or disagreement =with other people (including this campaign's co-ordinators) on other =issues is not at stake here. Becoming a signatory to the above statement =in no way implies agreement with any other campaign of any other =co-signatory or co-ordinator. If you become a co-signatory to this =letter, your full name will be listed at the bottom of the statement =delivered to the Chair and other members of the APPG. Your name will not =be read out at the APPG meeting, although the amount of co-signatories =will be stated at this meeting.To become a co-signatory to this letter, please email to either Ian or I, as soon as possible. It is =intended to deliver this statement to Des Turner, Chair of the APPG =before the next APPG meeting in November 2007.Angela Kennedy email@example.comIan McLachlan firstname.lastname@example.org_________________
(another complete waste of money that could have gone to biomedical research. How about a study to prove that the psychiatrists paid to deny our physical illness exists all have specific personalities?)Subject: RES: Use of the Temperament and Character Inventory (TCI) for assessment of personality in chronic fatigue syndromeUse of the Temperament and Character Inventory (TCI) for assessmentof personality in chronic fatigue syndrome.Journal: Psychosomatics. 2009 Mar-Apr;50(2):147-54.Authors: Van Campen E, Van Den Eede F, Moorkens G, Schotte C, SchachtR, Sabbe BG, Cosyns P, Claes SJ.Affiliation: Dept. of Psychiatry, Antwerp University Hospital,Antwerp, Belgium.NLM Citation: PMID: 19377023BACKGROUND: Chronic fatigue syndrome (CFS) is characterized by severeand prolonged fatigue, along with a set of nonspecific symptoms andsigns, such as sore throat, muscle pain, headaches, and difficultieswith concentration or memory.OBJECTIVE: The study examined whether CFS is associated with specificdimensions of Cloninger's psychobiological model of personality.METHOD: Personality profiles were compared between 38 CFS patientsand 42 control subjects by means of the Temperament and CharacterInventory (TCI).RESULTS: The CFS group showed significantly higher scores onHarm-Avoidance and Persistence.CONCLUSION: The current study shows a significant association betweenspecific personality characteristics and CFS. These personalitytraits may be implicated in the onset and/or perpetuation of CFS andmay be a productive focus for psychotherapy.
All too familiar!!Peter Topperwienwww.petertopperwien.com
Post a Comment