The National CFIDS Foundation:
By compiling this list, we hope to make people more fully aware of the seriousness of CFIDS/ME. Medical communities, media and governments understand neither how debilitating this illness is nor how those with it suffer. The United States National Institutes of Heath are not keeping track of the morbidity and mortality rates, although many have died and many more will if more is not done. The Centers for Disease Control and Prevention claim there have not been deaths reported to them. If you know of a friend or family member who had CFIDS/ME and has passed on, please help us in our quest to document the seriousness of this illness.
We are grateful for the help of William Young, who began the list and who compiled a great number of names on this list. Many of these people died of secondary illnesses attributed to CFIDS/ME. Medical doctors have pointed out that excruciating pain is the foremost reason that others have chosen to take their own lives. The majority of these patients did not have the medical care they needed; they suffered unremitting pain with little hope of relief or comfort. We acknowledge their suffering and hope that they have not died in vain.