By Peggy Munson:
However, the idea of death in ME/CFS causes many people to become incensed.
Because there are so many denialists, because ME/CFS deaths are rarely tracked (though studies by Leonard Jason and others have found that ME/CFS can be fatal), people can quarantine us to bathroom floors, and make us disappear in an ether of denial.
Doctors, of all people, will likely confirm whatever our families or society wants to believe: that we’re nuts, that we’re fakers, that we suffer from a bizarre form of agoraphobia with organ failure.
Dr. Bryon Hyde wrote, “Documented deaths in sporadic cases of M.E. are known, but it is my experience that treating physicians often become vitriolic when the deaths are attributed to M.E. by the families of the deceased. M.E. and CFS may be the only illnesses in history from which some physicians believe the patient is invulnerable to death.” Read more>>