THE NICEGUIDELINES BLOG: Kay Gilderdale Today, 10:00 on BBC Radio 4

Doctor Speedy and ME in search of medical honesty

Thursday, April 14, 2011

Kay Gilderdale Today, 10:00 on BBC Radio 4

Kay Gilderdale Today, 10:00 on BBC Radio 4

See also: 17 years of severe pain and suffering or The putative agent of ME/CFS can be transferred to monkeys or Professor of Psychology, Rhona Johnston shows that ME/CFS is NOT a psychological condition (on a UK Government website !!!) … a MUST READ

Posted by Dr Speedy at 1:13 AM

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Labels: CHRONIC DISEASE, Coping, DIAGNOSING, GOBSART, Health, LIFE, ME, ME/CFS, NICE, PACE, Secondary Gains, XMRV

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# The hell of a disease that is incurable, has inadequate therapies, indifferent government attitudes, social stigma and no strong public voice
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# Study demonstrates that 95% of ME/CFS Patients have Anticardiolipin Antibodies, suggesting that ME/CFS may be an autoimmune condition
# Study using cycle ergometers shows that exercise exacerbates ME/CFS
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# Almost 5% of ME/CFS patients contracted ME/CFS from a blood transfusion
# Markedly Impaired Cardiac Function in Chronic Fatigue Syndrome
# World exclusive: Prof Wessely admits in the BMJ that there were no ME/CFS patients in the ME/CFS PACE trial
# Short version of the International Myalgic Encephalomyelitis Consensus Criteria for GP's and consultants.pdf
# FULL version of the International Myalgic Encephalomyelitis Consensus Criteria.pdf
# The main characteristic of ME is an abnormally delayed muscle recovery after doing trivial things, if you don't have that, you don't have ME
# Dr. Hilary Jones, When you say, "ME is controversial", did you check that with Alison, Annabel and Sophia? Now, I'm sure you didn't, because all three officially died of ME. Yes you read that right, …
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# Prof Racaniello: the CDC has stumbled when tackling CFS, dismissing evidence that CFS is an organic disease, diverting funds designated for CFS to other programs
# Professor of Psychology Rhona Johnston shows that ME/CFS is NOT a psychological condition (on a UK Government website !!!) … a MUST READ
# Professor Wessely: A placebo is MORE effective than CBT
# Prof. Klimas: CBT does not cure (25% of) ME/CFS as claimed by Prof. White
# Now we know why Professor Klimas did CBT research, thank you Professor !!
# Top ten biomedical research findings in ME/CFS by Professor Komaroff
# New randomised controlled trial shows that CBT and GET make things worse in ME/CFS
# Karl died of Lyme disease because no doctor in Australia believed in neuroborreliosis
# The right state of ME
# Dr Melvin Ramsay (1986 !!!) : persistent virus infection is responsible for ME
# A MUST READ if you are XMRV positive
# Dr Dusty Miller: Why XMRV is NOT contamination
# New study cast further doubt on the denialibity of XMRV
# The retroviral penny has now dropped
# CFS subjects have a shortened life-span and are at risk for developing lymphoma
# Why exercise is bad for ME/CFS
# The main characteristic of ME is an abnormally delayed muscle recovery after doing trivial things, if you don't have that, you don't have ME

"Plenty of people are still dying of diseases which other people do not believe." (Dr. M.N.C. Dukes).

CBT and GET for ME: "There is no nonsense so gross that society will not, at some time, make a doctrine of it and defend it with every weapon of communal stupidity."

Robertson Davies

THE NICEGUIDELINES BLOG VERSUS THE NICEGUIDELINES

These are NOT the NICEGuidelines. This is "The NICEGUIDELINES BLOG." What are the differences:

The NICE Guidelines are biased publications based on the GOBSART (Good Old Boys Sitting Around a Table) approach.

This Blog however is not only evidence based but also uses critical reading to judge papers and articles. I also use common sense and listen to others. And finally I read both psychiatric and medical evidence and opinions from around the world to come to a conclusion.

I’m not sponsored by anybody or paid by whatever company as seems to be the norm with many psycho people who publish the same article almost on a weekly base.

So if you value an opinion, formed as a result of participating in many ME activities, for example being bed bound for years, you have come to the right BLOG. All these activities have allowed me to form an opinion as a Doctor and as a Patient. And that is important as the voice of the latter is discarded by many including NICE.

If you don’t read this blog, you will miss out on “accredited” medical education. If you do read it, you may actually become a doctor who doesn’t stop thinking or forgets to ask critical questions. Many good things, including satisfied patients are at your command.

So, if you arrived here for the straightforward GOBSART approach, I will disappoint you. If you are interested in forming your own opinion about ME, and other interesting things, read on!

About Dr. Speedy.

I am a Family Physician or GP as it is called in Australia or the UK. I am also an ME patient unfortunately. Bedbound that is. So at the moment I’m in private practice so to speak. I’ve got only one patient, ME, or is it me?

I graduated as a doctor a long time ago, and I am the founder and editor of The NICEGUIDELINES BLOG, an internet based ME BLOG that is devoted to critical reading and cheering you or ME up.

I have the following conflict of interest: I would like to get better and see that the wasting of public money on CBT (talk therapy for a neurological disease, really helpful) and other silly therapies for ME stops, and will be used in better ways.

My goal has always been to help, and if possible, cure patients. With this disease you will soon find out that many psychiatrists and psychologists are only in it to make money and get their name in the spotlight. And what happens to and with the patients is irrelevant.

I stand to benefit both mentally, physically and also financially if this silliness would stop, and I would get my health back, and I can go back to work and have a normal life again. Please evaluate my postings with this in mind! And remember, there are also (lots of) psychiatrists and psychologists who haven’t switched their brain off.

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Important Sites to Check Out

2010 Revised Canadian Myalgic Encephalomyelitis Chronic Fatigue Syndrome criteria.pdf
ahummingbirdsguide
Biomedical ME/CFIDS
blogging not jogging
CFS Central
CFS Patient Advocate
Cinder Bridge
Dr Myhill
Dr Simon Wessely, no not that one
Glasbergen Cartoons
GP revalidation !!!
HOPE FOR FM AND CFIDS SUFFERERS
It's only ME, it's not my mind
Life as we know it
Living With Chronic Fatigue Syndrome
ME Agenda
Me Free For All
NMJ's velo gubbed legs
R.E.S.C.I.N.D.
Racing Addicts
SOPHIA AND M.E.
Treating XMRV
Veterans Today