Posted by Susannah, From my Bed:
I'm one of the 25% of people with my illness who are severely affected. I am completely bedbound. I have to lie almost completely flat most of the time, as even sitting can cause me to become completely exhausted very, very quickly, and cause my blood pressure and heart rate to soar. I have to be completely propped up by pillows all down each side of my body, and even under my arms to hold them up, as I'm simply too weak to do it for myself, and it cases a lot of pain to not have that support. I'm in almost constant severe pain.