Monday, December 5, 2011

Sophia Mirza and Lynn Gilderdale who died of severe ME had dorsal root ganglionitis - infected nerve roots

Posted by Fundraising 4ME, 5 DECEMBER 2011:

One Last Goodbye

Yesterday marked the 3rd anniversary of the death of Lynn Gilderdale on 4th December 2008, after 17 years of suffering with very severe myalgic encephalomyeltis, which she had contracted at 14 years of age.

Along with others who have lost their lives to the effects of this disease, Lynn is never far from our thoughts and our sincere condolences are with Lynn's family at this time; particularly with her mother Kay, whose deeply moving book, One Last Goodbye, is dedicated to her inspirational daughter. Kay is also a contributor to the film Voices from the Shadows, produced by Natalie Boulton and Josh Biggs, mother and brother of a sufferer of severe ME. In the Epilogue to One Last Goodbye, Kay writes: “Meanwhile I have decided to carry on campaigning in Lynn's name to promote awareness of ME and to raise money for research. Research is the key to understanding this illness and Lynn has already made her own contribution.

When her body was examined by the pathologist who specialised in M.E, he discovered “dorsal root ganglionitis” - infected nerve roots – and nodules of Nageotte, which are little tombs of dead cells, in her spinal cord. These would have caused her terrible pain and sensory nerve damage. They found similar cells in the body of Sophia Mirza, an ME sufferer who died in 2005 at the age of 32, and I believe in other sufferers. These findings are proof that Lynn's ME was a neurological disease”. Lynn would say to her mother:... Read more>>

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