tag:blogger.com,1999:blog-4628351911149999835.post1368509438084995990..comments2024-03-18T18:20:14.675-07:00Comments on THE NICEGUIDELINES BLOG: The main characteristic of ME is an abnormally delayed muscle recovery after doing trivial things, if you don't have that, you don't have MEDr Speedyhttp://www.blogger.com/profile/04873114586852370992noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-4628351911149999835.post-13703673877551911952012-08-16T19:49:49.903-07:002012-08-16T19:49:49.903-07:00i have had this for over a year now, seems to be g...i have had this for over a year now, seems to be getting worse, afraid - having to leave work to nap - barely can get out of bed in am, going tostore is huge issue - im only 38 and used to be very active - at gym 4-5 times/week, but now even short walks can bring on the illness - the body aches, headaches, neckache and fatigue. i knew it was virul when it first came on - cause of the aching - Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4628351911149999835.post-56071066378802668152012-02-09T03:11:33.050-08:002012-02-09T03:11:33.050-08:00Thankyou for your article. I have had ME for 2.5 y...Thankyou for your article. I have had ME for 2.5 years now and have experienced the same naivety from doctors. However, about 3 months ago i came across The Optimum Health Clinic(http://www.freedomfromme.co.uk/)who are a group of dedicated practioners who have all had ME and have helped thousands of people all around the world regain their health. They really understand the illness and have Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4628351911149999835.post-88068229684265193382012-01-05T04:30:48.013-08:002012-01-05T04:30:48.013-08:00Thia is so true, I have simply given up trying to ...Thia is so true, I have simply given up trying to explain to people, including doctors that the fatigue is only a small part of the problem, but the continuous pain is and weakness is the main one!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4628351911149999835.post-26219397788656624772011-12-26T08:23:12.924-08:002011-12-26T08:23:12.924-08:00Dear Dr. Speedy, With your permission I would like...Dear Dr. Speedy, With your permission I would like to add to the knowledge that is not forthcoming from docs. I asked a question at the London A.G.M., of the M.E. Assn., in 1985/86, (Friends Ho. Euston Rd).,after I had spoken with several hundred potential and confirmed M.E., victims in the Anglian Region of the U.K. Dr. David Smith, Medical Officer for the Assn., at that time, had sent out RitaJoynoreply@blogger.comtag:blogger.com,1999:blog-4628351911149999835.post-33934227058744606802011-12-26T08:23:12.656-08:002011-12-26T08:23:12.656-08:00Dear Dr. Speedy, With your permission I would like...Dear Dr. Speedy, With your permission I would like to add to the knowledge that is not forthcoming from docs. I asked a question at the London A.G.M., of the M.E. Assn., in 1985/86, (Friends Ho. Euston Rd).,after I had spoken with several hundred potential and confirmed M.E., victims in the Anglian Region of the U.K. Dr. David Smith, Medical Officer for the Assn., at that time, had sent out RitaJoynoreply@blogger.comtag:blogger.com,1999:blog-4628351911149999835.post-55126159976212373482011-06-25T00:20:59.561-07:002011-06-25T00:20:59.561-07:00Very, very well put!!! Thank you! :)Very, very well put!!! Thank you! :)Susannahhttps://www.blogger.com/profile/04706238776151154062noreply@blogger.comtag:blogger.com,1999:blog-4628351911149999835.post-73604446325932001222011-06-24T12:54:40.672-07:002011-06-24T12:54:40.672-07:00Thank you for a brilliant attack on my behalf
and ...Thank you for a brilliant attack on my behalf<br />and on behalf of all those who value integrityAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-4628351911149999835.post-51962389283101038212011-06-23T23:24:37.655-07:002011-06-23T23:24:37.655-07:00Dear Dr. Speedy,… I know some ‘pain in the butt’ s...Dear Dr. Speedy,… I know some ‘pain in the butt’ so called Dutch CFS- Experts to whom I would like to send your outstanding letter… I doubt that these doctors will ever ask the same question as Ms Groves did…Anonymousnoreply@blogger.com