tag:blogger.com,1999:blog-4628351911149999835.post2541148430167804341..comments2024-03-18T18:20:14.675-07:00Comments on THE NICEGUIDELINES BLOG: ME vs CFS: More than just a nameDr Speedyhttp://www.blogger.com/profile/04873114586852370992noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-4628351911149999835.post-68117071661044010952012-04-15T18:41:43.767-07:002012-04-15T18:41:43.767-07:00I so agree with all you wrote. Bravo!!! Thank yo...I so agree with all you wrote. Bravo!!! Thank you. I cannot tell you how upset I am and have been with the CFS name. After 37 years of this horrid nightmare, I cannot believe we're still fighting the basics we were engaged in ages ago.<br /><br />I finally started a blog 7 weeks ago and addressed one of the issues, so-called "CFS specialists" and how those things go, indirectly,irene speakshttps://www.blogger.com/profile/15306297235592610766noreply@blogger.comtag:blogger.com,1999:blog-4628351911149999835.post-54874823309341638412012-03-05T12:58:08.021-08:002012-03-05T12:58:08.021-08:00This blog has been taken down already.
The BPS pol...This blog has been taken down already.<br />The BPS police are getting everywhere.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4628351911149999835.post-30912263592613818942012-03-03T05:20:53.947-08:002012-03-03T05:20:53.947-08:00There are also different definitions of CFS.
The O...There are also different definitions of CFS.<br />The Original one of which there was Never any proper research done and these very ill people were just slapped with the insulting diagnosis of CFSyndrome which was meant to be a "name place-holder" ONLY, until the Proper research could be done.. <br /><br />But then the CDC never did any.. <br /><br />They eventually went on to ReDefineAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-4628351911149999835.post-33728388272874716092012-03-01T19:32:47.532-08:002012-03-01T19:32:47.532-08:00http://www.investinme.org/Article-050%20Sophia%20W...http://www.investinme.org/Article-050%20Sophia%20Wilson%2001-RIP.HTM<br /><br />The Inquest into the Death of Sophia Mirza<br /><br />Summary<br /><br />Today, 13th June 2006, the inquest into the death of Sophia Mirza was held in Brighton Coroners Court, England.<br /><br />The cause of death was stated as<br />'The verdict was Acute aneuric renal failure due to dehydration arising as a Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4628351911149999835.post-10541235823377435812012-03-01T16:06:07.054-08:002012-03-01T16:06:07.054-08:00Yeah, well we can argue about names for centuries....Yeah, well we can argue about names for centuries. It's CFS on Sophia Mirza's death certificate. Not M.E. http://www.sophiaandme.org.uk/docsindex/212.jpg In Black and White. CFS killed Sophia Mirza. There is no mention of M.E.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4628351911149999835.post-1219426593038944932012-03-01T11:50:58.666-08:002012-03-01T11:50:58.666-08:00As a very severe, acute infectious onset ME patien...As a very severe, acute infectious onset ME patient of many decades, I endorse this view. Thank you for posting it Dr Speedy.Anonymousnoreply@blogger.com