tag:blogger.com,1999:blog-4628351911149999835.post6410766758534388730..comments2024-03-18T18:20:14.675-07:00Comments on THE NICEGUIDELINES BLOG: Response to Review of Ethics Approval for SMILE study of Lightning Process on Children with ME/CFSDr Speedyhttp://www.blogger.com/profile/04873114586852370992noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-4628351911149999835.post-75509783539366534792011-01-19T05:32:46.281-08:002011-01-19T05:32:46.281-08:00It beggars belief that an unproven procedure - I c...It beggars belief that an unproven procedure - I can't call it a 'treatment' because I am not aware of anyone with ME who has been helped by LP - can be approved for a trial involving children. I can only deduce that those reponsible for giving this approval are not fully aware of what having ME entails and therefore how potentially dangerous LP could be on the health of those Chrishttps://www.blogger.com/profile/16706699071854026724noreply@blogger.comtag:blogger.com,1999:blog-4628351911149999835.post-67304816125141915972011-01-18T12:53:29.553-08:002011-01-18T12:53:29.553-08:00If the NRES can continue to ignore this level of c...If the NRES can continue to ignore this level of concern then their working practices must be brought into question. There are clear concerns about patient safety and vested interest which they have simply not addressed in the first instance or answered subsequent to earlier complaints.<br /><br />I wonder what the next port of complaint is? Presumably there must be a Human Rights issue amongstLilpinkhttps://www.blogger.com/profile/11480603897401811321noreply@blogger.com