tag:blogger.com,1999:blog-4628351911149999835.post4124585093164736707..comments2024-03-18T18:20:14.675-07:00Comments on THE NICEGUIDELINES BLOG: HOW MUCH DOES A SILLY TRIAL COST????Dr Speedyhttp://www.blogger.com/profile/04873114586852370992noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-4628351911149999835.post-25675910680944420832010-10-12T23:52:04.619-07:002010-10-12T23:52:04.619-07:00The authoritative point of view, curiously..The authoritative point of view, curiously..Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4628351911149999835.post-88001360862415537492008-06-05T06:54:00.000-07:002008-06-05T06:54:00.000-07:00"Most information about ME/CFS is by a Simon Wessl..."Most information about ME/CFS is by a Simon Wessley who has been casted out by the World medical board for false information this is what the UK uses to train people."<BR/><BR/>Can you tell me where this information came from please and its validity/source? We are working on a letter protest and it would make a brilliant addition to it, but we have to source it first etc. (see Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4628351911149999835.post-48808384997801496062008-04-19T03:58:00.000-07:002008-04-19T03:58:00.000-07:00The trial is a complete joke really what needs to ...The trial is a complete joke really what needs to be done is<BR/><BR/>1. ME and CFS are not the same this has been proven World Wide but UK refuses it.<BR/><BR/>2. Doctors here have been give wrong information I was told by 1 doctor who offered me this trial ME isnt really real it's Chronic Fatigue Symdrone this is false information.<BR/><BR/>3. There are tests to know if someone has ME spect is Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4628351911149999835.post-62283588872497033402007-10-04T23:55:00.000-07:002007-10-04T23:55:00.000-07:00Thx for your comments,absolutely amazing how much ...Thx for your comments,<BR/>absolutely amazing how much money is being wasted down the CBT drain.<BR/>Just give people with ME a laptop would be a lot cheaper/ more effective;<BR/>or spend it on real and proper research; might even get us our health back so we can go back to work etc. Wouldn't that be great and a nice goal for the government????<BR/><BR/>Dr Speedy.Unknownhttps://www.blogger.com/profile/15131604806560674833noreply@blogger.comtag:blogger.com,1999:blog-4628351911149999835.post-21374538123699870782007-10-04T15:29:00.000-07:002007-10-04T15:29:00.000-07:00The FINE Trial http://www.biomedcentral.com/1741-7...The FINE Trial http://www.biomedcentral.com/1741-7015/4/9 , which is a bit like the PACE Trial and is also run by those from the CBT School of Thought, will cost the taxpayer over £1m incl. £824,129 from the Medical Research Council<BR/>http://www.nrr.nhs.uk/ViewDocument.asp?ID=N0695185556<BR/><BR/>Then there's around £411,000 in NHS costs<BR/>(ref. http://www.meresearch.org.uk/information/Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4628351911149999835.post-51138786701818289732007-10-04T15:12:00.000-07:002007-10-04T15:12:00.000-07:00When I said it cost "over £3m" to the taxpayer, th...When I said it cost "over £3m" to the taxpayer, that's actually likely to be on the low side (I like to be able to back up what I say in formal settings).<BR/><BR/>After you posted it I looked around again: in a piece for the Edinburgh MESH Spring 2004 newsletter, Michael Sharpe said: "The trial will cost nearly four million pounds." <BR/><BR/>If anyone goes to:<BR/>http://www.nrr.nhs.uk/Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4628351911149999835.post-38034509941276402552007-10-04T12:17:00.000-07:002007-10-04T12:17:00.000-07:00Definitely, Dr Speedy, they should be buying us al...Definitely, Dr Speedy, they should be buying us all laptops, mine is fading so that would be a lovely gesture from the deluded champions of CBT, it's the least they could do to make up for the dangerous misinformation they spread.nmjhttps://www.blogger.com/profile/05477643084619789093noreply@blogger.com