tag:blogger.com,1999:blog-4628351911149999835.post8986843872588721796..comments2024-03-18T18:20:14.675-07:00Comments on THE NICEGUIDELINES BLOG: Dr. Hilary Jones, When you say, "ME is controversial", did you check that with Alison, Annabel and Sophia?Dr Speedyhttp://www.blogger.com/profile/04873114586852370992noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-4628351911149999835.post-85560221703041496032014-01-23T15:33:20.143-08:002014-01-23T15:33:20.143-08:00You are both conveniently forgetting she had gangl...You are both conveniently forgetting she had ganglionitis of the spinal cord found on autopsy. Thus by default she had Neuro inflammation, severe pain and sensory dysfunction. ME describes an inflammatory state which is confirmed with autopsy, as it was with this tragic case. ME and CFS cannot donate blood, umbilical cord or tissue for a reason. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4628351911149999835.post-25730339283004121542012-05-23T09:11:16.504-07:002012-05-23T09:11:16.504-07:00I have to say "Anonymous" is right - and...I have to say "Anonymous" is right - and the Sophia Mirza case is being used - unwisely I believe - by ME activists. Their motives are good, but that doesn't alter the fact they are misrepresenting the case. <br /><br />Sophia may have suffered from ME?CFS, but that's not what killed her. She died from acute renal failure due to dehydration. ME is only listed as a contributing Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4628351911149999835.post-2767701657739590312011-08-30T15:37:50.829-07:002011-08-30T15:37:50.829-07:00Basically she reduced her fluid intake to 4 fl oz ...Basically she reduced her fluid intake to 4 fl oz per day and died of renal failure. If you are a GP you should know that drinking 4 fl oz of liquid per day would likely lead to renal failure. I guess the pathologist didn't realise she had deliberately reduced her fluid intake. Still, it doesn't mean that CFS killed her, no matter what people would like to think.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4628351911149999835.post-54249473039748604282011-08-18T11:56:42.404-07:002011-08-18T11:56:42.404-07:00Thx for the compliment Me, myself and ME !!Thx for the compliment Me, myself and ME !!Dr Speedyhttps://www.blogger.com/profile/04873114586852370992noreply@blogger.comtag:blogger.com,1999:blog-4628351911149999835.post-1724797444688311392011-08-18T11:55:37.585-07:002011-08-18T11:55:37.585-07:00Actually, Sophia Mirza died of:
"Sophia died...Actually, Sophia Mirza died of:<br /><br />"Sophia died from M.E. in November 2005."<br /><br />"The extensive post mortem showed up no cause of death. We requested an independent neuropathologist to research Sophia's spine. The findings confirmed that it contained massive infection. At the inquest the Coroner confirmed that <br /><br />"She died as a result of acute renalDr Speedyhttps://www.blogger.com/profile/04873114586852370992noreply@blogger.comtag:blogger.com,1999:blog-4628351911149999835.post-29169245348457661352011-08-18T08:45:53.650-07:002011-08-18T08:45:53.650-07:00Actually, Sophia Mirza died of dehydration because...Actually, Sophia Mirza died of dehydration because she had limited her fluid intake because she believed she was 'allergic' to water (which is of course impossible). She also believed that she was sensitive to low-level EMF (again, impossible).<br /><br />So basically it was suicide caused by delusional ideas. Is that the image you want to present of us?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4628351911149999835.post-87538820270028838022011-05-17T06:40:10.589-07:002011-05-17T06:40:10.589-07:00Hi, just posted this blog on the page of Dr.Hilary...Hi, just posted this blog on the page of Dr.Hilary Jones, and left a thought provoking post. Let's see how long it lasts. <br />I was quite rude (I hope). thought it only right considering how rude he has been to us.<br />Had to 'like' the little man's page but quickly 'unliked' it once I had commented.<br />Fantastic blog:-))Me, myself and MEhttps://www.blogger.com/profile/10630294932861801754noreply@blogger.comtag:blogger.com,1999:blog-4628351911149999835.post-74997097451045084232011-05-16T10:53:18.186-07:002011-05-16T10:53:18.186-07:00UK ME sufferers have been posting on Dr Hilary Jon...UK ME sufferers have been posting on Dr Hilary Jones’s Facebook today (16th May), only to find their informative posts removed and some ME sufferers banned from the Facebook page. <br />http://www.facebook.com/DoctorHilaryJones<br /> <br />One ME sufferer suggested that Dr Jones might be able to attend the Invest in ME 6th International Conference on the 20th May to hear the International ME Anonymousnoreply@blogger.com