tag:blogger.com,1999:blog-46283519111499998352024-03-18T18:20:16.440-07:00THE NICEGUIDELINES BLOGDoctor Speedy and ME
in search of medical honestyDr Speedyhttp://www.blogger.com/profile/04873114586852370992noreply@blogger.comBlogger3688125tag:blogger.com,1999:blog-4628351911149999835.post-25223118616255422402021-06-10T05:30:00.002-07:002021-06-10T05:30:15.384-07:00The psychosomatic focus on CBT and GET has delayed scientific understanding of ME/CFS by 30 yearsBy David F Marks: "A new properly scientific framework for the understanding of MUS/MECFS is urgently needed, grounded in the biological bases of the illnesses. The psychosomatic focus on CBT and GET for MUS and MECFS has delayed scientific understanding of the disorders by 25 to 30 years." Dr Speedyhttp://www.blogger.com/profile/04873114586852370992noreply@blogger.com4tag:blogger.com,1999:blog-4628351911149999835.post-1996103094053538942020-05-01T06:07:00.003-07:002020-05-01T06:07:59.988-07:00Systematic review: widespread disruption of the autonomic nervous system network in ME/CFS
RESEARCH ARTICLE
A systematic review of neurological impairments
in myalgic encephalomyelitis/chronic fatigue
syndrome using neuroimaging techniques
Rebekah Maksoud,
Stanley du Preez,
Natalie Eaton-Fitch,
Kiran Thapaliya,
Leighton Barnden,
Hélène Cabanas,
Donald Staines, …
Published: April 30, 2020
https://Dr Speedyhttp://www.blogger.com/profile/04873114586852370992noreply@blogger.com4tag:blogger.com,1999:blog-4628351911149999835.post-39359539347135993972020-03-25T07:34:00.000-07:002020-03-25T07:34:11.539-07:0021-year old with no underlying medical conditions dies from Corona
A healthy 21-year-old woman has died from coronavirus despite having no underlying health conditions, her family have said.
Chloe Middleton's family took to social media to describe the "unimaginable pain" they are going through after her death.
The young woman was described as healthy by her family who are urging people to strictly follow government measures to stay at home.
Mum Diane Dr Speedyhttp://www.blogger.com/profile/04873114586852370992noreply@blogger.com10tag:blogger.com,1999:blog-4628351911149999835.post-12506760011162583302020-02-18T06:38:00.003-08:002020-02-18T08:53:17.862-08:00Care providers use the knowledge gap about ME/CFS as an excuse for indolence
February 2020
Läkartidningen 117(8):FY3L
Project: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Sten Helmfrid
Sture Eriksson
Abstract
Care providers use the knowledge gap about ME/CFS as an excuse for indolence. In spite of differences of opinion among researchers on the significance of reported physiological abnormalities, studies support the Dr Speedyhttp://www.blogger.com/profile/04873114586852370992noreply@blogger.com27tag:blogger.com,1999:blog-4628351911149999835.post-79332250746442770412020-02-10T09:05:00.001-08:002020-02-10T12:21:01.101-08:00First transferable factor in #MEcfs blood?
https://twitter.com/BhupeshPrusty/status/1223242526188089344
»We could have our first transferable factor in #MECFS blood«
Big news from Prusty Lab at University of Würzburg! But they need financial resources to continue their great work. Now we all can help them out together!
Retweets appreciated! #GOfundMECFS
https://bit.ly/gofundmecfs
Dr. Prusty believes that a viral infection Dr Speedyhttp://www.blogger.com/profile/04873114586852370992noreply@blogger.com0tag:blogger.com,1999:blog-4628351911149999835.post-51647266976008716682020-02-04T06:04:00.000-08:002020-02-04T06:04:09.578-08:00Cell-Based Blood Biomarkers for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Preprint Article Version 1 This version is not peer-reviewed
Cell-Based Blood Biomarkers for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Daniel Missailidis * , Oana Sanislav , Claire Allan , Sarah Annesley , Paul Fisher *
Version 1 : Received: 2 February 2020 / Approved: 3 February 2020 / Online: 3 February 2020 (10:Dr Speedyhttp://www.blogger.com/profile/04873114586852370992noreply@blogger.com0tag:blogger.com,1999:blog-4628351911149999835.post-46518282251745859512020-02-02T16:11:00.000-08:002020-02-02T16:11:10.014-08:00Fibromyalgia Syndrome: A Case Report on Controlled Remission of Symptoms by a Dietary Strategy
Fibromyalgia Syndrome: A Case Report on Controlled Remission of Symptoms by a Dietary Strategy
Silvia Maria Lattanzio1* and Francesca Imbesi2
1Department of Biomedical Sciences, University of Padova, Padova, Italy
2Neurological Department, Ospedale Niguarda Ca’ Granda, Milan, Italy
A 34-year-old woman suffered from significant chronic pain, depression, non-restorative sleep, Dr Speedyhttp://www.blogger.com/profile/04873114586852370992noreply@blogger.com0tag:blogger.com,1999:blog-4628351911149999835.post-91561556530485243552019-10-14T16:16:00.000-07:002019-10-14T16:22:08.189-07:00Work Rehabilitation and Medical Retirement for ME/CFS Patients. A Review and Appraisal of Diagnostic Strategies
Open AccessReview
Work Rehabilitation and Medical Retirement for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patients. A Review and Appraisal of Diagnostic Strategies
by Mark Vink 1,* and Friso Vink-Niese 2
1
Family and Insurance Physician, 1096 HZ Amsterdam, The Netherlands
2
Independent Researcher, 49032 Osnabrück, Germany
*
Author Dr Speedyhttp://www.blogger.com/profile/04873114586852370992noreply@blogger.com0tag:blogger.com,1999:blog-4628351911149999835.post-50119706602186515942019-05-09T08:27:00.000-07:002019-05-09T08:27:02.728-07:00Cognitive behavioural therapy for ME/CFS is not effective. Re-analysis of a Cochrane review
Mark Vink, Alexandra Vink-Niese
First Published May 2, 2019 Review Article
Abstract
Analysis of the 2008 Cochrane review of cognitive behavioural therapy for chronic fatigue syndrome shows that seven patients with mild chronic fatigue syndrome need to be treated for one to report a small, short-lived subjective improvement of fatigue. This is not matched by an Dr Speedyhttp://www.blogger.com/profile/04873114586852370992noreply@blogger.com0tag:blogger.com,1999:blog-4628351911149999835.post-5871890483526475012018-10-11T09:43:00.001-07:002018-10-18T12:51:56.015-07:00Damning criticism of the flawed ME/CFS Graded exercise therapy Cochrane review
Graded exercise therapy for myalgic encephalomyelitis/chronic fatigue syndrome is not effective and unsafe. Re-analysis of a Cochrane review
Mark Vink, Alexandra Vink-Niese,
First Published October 8, 2018 Review Article
https://doi.org/10.1177/2055102918805187
Abstract
The Dr Speedyhttp://www.blogger.com/profile/04873114586852370992noreply@blogger.com0tag:blogger.com,1999:blog-4628351911149999835.post-77240246979299285272018-09-06T03:32:00.001-07:002018-09-06T03:32:29.166-07:00Is reduced cytotoxic activity in natural killer (NK) cells due to loss of TRPM3 ion channel function?
Loss of Transient Receptor Potential Melastatin 3 ion channel function in natural killer cells from Chronic Fatigue Syndrome/Myalgic Encephalomyelitis patients
Hélène CabanasEmail authorView ORCID ID profile,
Katsuhiko Muraki,
Natalie Eaton,
Cassandra Balinas,
Donald Staines and
Sonya Marshall-Gradisnik
Molecular Medicine201824:44
https://doi.org/Dr Speedyhttp://www.blogger.com/profile/04873114586852370992noreply@blogger.com0tag:blogger.com,1999:blog-4628351911149999835.post-52217592109215267142018-08-28T12:05:00.000-07:002018-08-28T12:05:05.161-07:00Damning criticism of the flawed #PACEtrial by psychologist Prof Brian Hughes
Damning criticism of the flawed #PACEtrial in a new book by Prof Brian Hughes on the “rampant methodological crisis” in psychology.
'Rampant methodological crisis' - describes how psychologists invent their own study methods, change them part way if the data don't fit their preconceptions, misuse stats etc.
“The controversies surrounding the PACE trial can be seen as emblematic Dr Speedyhttp://www.blogger.com/profile/04873114586852370992noreply@blogger.com1tag:blogger.com,1999:blog-4628351911149999835.post-38257847605240065872018-08-21T04:50:00.004-07:002018-08-21T05:00:07.860-07:00The Times: Call for review of ‘flawed’ ME research in Lancet letterR
By Tom Whipple, Science Editor,
August 21 2018, 12:01am, The Times
More than a hundred academics have joined ten MPs and scores of patient groups from around the world to sign an open letter calling for The Lancet to reanalyse a study into treatment for myalgic encephalomyelitis (ME).
The letter follows a debate in parliament in which one MP said that the study, which is used Dr Speedyhttp://www.blogger.com/profile/04873114586852370992noreply@blogger.com0tag:blogger.com,1999:blog-4628351911149999835.post-7097535306789969682018-08-14T08:56:00.004-07:002018-08-14T08:56:48.192-07:00Multidisciplinary rehabilitation treatment is not effective for ME/CFS : A review of the FatiGo trial
Review of the FatiGo trial (Vos-Vromans), one of the 13 pieces of evidence NICE will review. FatiGo, a trial with many problems including ignoring its own results.
Mark Vink, Alexandra Vink-Niese,
First Published August 6, 2018 Review Article
Abstract
The FatiGo trial concluded that multidisciplinary rehabilitation treatment is more effectiveDr Speedyhttp://www.blogger.com/profile/04873114586852370992noreply@blogger.com1tag:blogger.com,1999:blog-4628351911149999835.post-76628521981460150832017-09-24T11:49:00.001-07:002017-09-24T11:49:27.143-07:00Please SMILE and GETSET for the FUQOFF trialDr Speedyhttp://www.blogger.com/profile/04873114586852370992noreply@blogger.com89tag:blogger.com,1999:blog-4628351911149999835.post-62178124748936336142017-06-29T16:37:00.004-07:002017-06-29T16:37:43.383-07:00GETSET: when your mates are the trial steering committee ...
No problem making Endpoint changes during an unblinded trial if your mates who also ignore all the evidence that #MEcfs is a physical disease (PACE trial's Alastair Miller (infectious disease specialist and former Action for ME Medical advisor, the only "ME charity" that was part of the PACE trial and psychologist Rona Moss- Morris) are the trial steering committee and your PACE trial mates Dr Speedyhttp://www.blogger.com/profile/04873114586852370992noreply@blogger.com0tag:blogger.com,1999:blog-4628351911149999835.post-74929332634391451172017-06-27T11:39:00.000-07:002017-06-27T11:39:12.652-07:00Dr Keith Geraghty's undeclared conflict of interestDr Speedyhttp://www.blogger.com/profile/04873114586852370992noreply@blogger.com0tag:blogger.com,1999:blog-4628351911149999835.post-78821521051030748482017-06-24T15:24:00.000-07:002017-06-24T15:24:18.222-07:00Does the PACE trial represent professional misconduct?Dr Speedyhttp://www.blogger.com/profile/04873114586852370992noreply@blogger.com2tag:blogger.com,1999:blog-4628351911149999835.post-68494332377139083022017-03-27T12:28:00.001-07:002017-03-27T12:28:33.819-07:00PACE trial should acknowledge inefficacy and harmfulness of CBT and GET
By Mark Vink, (Family Physician) the author of the 2016 Review of the PACE trial for which he was nominated for the John Maddox Prize for Standing up for Science.
If CBT and GET had really been effective there would have been no need for an extensive number of changes to the recovery criteria made during an unblinded trial, making the definition much less accurate to the point that peopleDr Speedyhttp://www.blogger.com/profile/04873114586852370992noreply@blogger.com0tag:blogger.com,1999:blog-4628351911149999835.post-41511705023965520482017-03-27T12:21:00.004-07:002017-03-27T12:21:57.344-07:00Berkeley's lecturer in public health: Bizarre PACE trial response
By David Tuller, lecturer in public health and journalism at the University of California, Berkeley:
They have recently argued, in response to Wilshire et al, that it doesn't matter that some participants were recovered on the physical function or the fatigue outcomes at baseline because there were other recovery criteria. This is truly a bizarre response for researchers to make. It is also aDr Speedyhttp://www.blogger.com/profile/04873114586852370992noreply@blogger.com1tag:blogger.com,1999:blog-4628351911149999835.post-84372384411856792152016-12-12T12:58:00.002-08:002016-12-12T12:58:57.793-08:00 Psychologist Prof Coyne: PACE trial's CBT for ME/CFS is condescending pseudoscience Psychologist Prof Coyne on #PACEtrial's CBT for #MEcfs: condescending pseudoscience presented to convince patients that their problems were in their heads
from Danish RCT of cognitive behavior therapy for whatever ails your physician about you | Mind the Brain http://blogs.plos.org/mindthebrain/2016/12/07/danish-rct-of-cognitive-behavior-therapy-for-whatever-ails-your-physician-about-you/
Dr Speedyhttp://www.blogger.com/profile/04873114586852370992noreply@blogger.com0tag:blogger.com,1999:blog-4628351911149999835.post-32570726530584248202016-12-10T10:52:00.001-08:002016-12-10T10:59:14.292-08:00 Sir Simon Wessely (the godfather of PACE): The PACE trial simply made whatever adjustments they needed in order to get the results they wanted
Sir Simon Wessely (the godfather of PACE): The PACE trial simply made whatever adjustments they needed in order to get the results they wanted
By spoonseeker 9 December 2016:
As for the PACE authors themselves, I doubt that anything will make a difference. They had clearly decided how the trial was going to turn out before they even started it, and I can’t see anything changing Dr Speedyhttp://www.blogger.com/profile/04873114586852370992noreply@blogger.com0tag:blogger.com,1999:blog-4628351911149999835.post-39496893529639713492016-11-25T12:31:00.003-08:002016-11-25T12:31:29.970-08:00Dr Phil Hammond in this week's Private Eye Magazine: ME "is a proven and classified neuro-immune disorder"
Dr Phil Hammond in this week's Private Eye Magazine: ME "is a proven and classified neuro-immune disorder"
Dr Speedyhttp://www.blogger.com/profile/04873114586852370992noreply@blogger.com1tag:blogger.com,1999:blog-4628351911149999835.post-49031333748544497772016-11-21T09:46:00.000-08:002016-11-21T09:46:46.014-08:00 LSE: The medical and psychiatric establishment has to admit and apologise for abusing ME/CFS patientsLSE: The medical and psychiatric establishment has to admit and apologise for abusing ME/CFS patients
LSE, 21 November 2016:
"the psychiatrisation of conditions like Myalgic Encephalopathy/Chronic Fatigue Syndrome (ME/CFS) where organic and physical conditions become ‘all in the mind’. Here, whilst there is a complex inter-relationship between the mind and body, psychiatric Dr Speedyhttp://www.blogger.com/profile/04873114586852370992noreply@blogger.com1tag:blogger.com,1999:blog-4628351911149999835.post-88583602715534956562016-11-11T14:03:00.000-08:002016-11-11T14:03:06.435-08:00The inaugural Dr. Speedy health award goes to ...The inaugural Dr. Speedy health award for a lifetime dedication to improving the health and quality of life for people with ME/CFS goes to a man who has taken on the mighty Pinocchio Psychiatrists; a fight based on scientific evidence, an essential part of modern day evidence based medicine against people who have ignored all scientific evidence for decades (even if they have produced it Dr Speedyhttp://www.blogger.com/profile/04873114586852370992noreply@blogger.com1