There has been quite a bit of press lately about the CFS conference brought to us by the psycho boys at the club of physicians.
Now I have highlighted in an earlier BLOG what a delightful programm they have put together and after seeing Dr Enlander’s email to the Editor of The Daily Telegraph who knew more about ME as shown in their recent article then the CBT brigade put together after decades of porkies and so, I decided to have a look at the site of the physicians and it is amazing if you do that. Let me just quote the text from their site, and then see what you think:
"Chronic fatigue syndrome
Monday 28 April 2008
Venue: The Royal Society of Medicine, 1 Wimpole Street, London, W1G 0AE
The aim of this meeting is to take a broad look at chronic fatigue syndrome, examining its nature and definition, pathophysiology, epidemiology, clinical assessment and diagnosis, the patient perspective, and various approaches to treatment. This is a scientific conference and there will be an emphasis on an evidence based approach throughout."
So, the aim is to have a broad look and the way you go about that is by only inviting CBT people. Which is the logical way of doing things obviously.
Apparently it is a scientific conference but all evidence is excluded from being told to whoever forked out some money to be there…
Now, if you read the following very careful then they should send all the CBT people home again. You see, they say the emphasis will be "on an evidence based approach throughout."
As there is no evidence for CBT in ME it will be a conference without speakers, must be very interesting… also very interesting is the wording “various approaches to treatment” by that they mean CBT, CBT, CBT, CBT, CBT, CBT, CBT, GET, GET, GET, GET and nothing else…
Now I must say the most interesting wording however is “clinical assessment,” do they mean by that to throw kids in the pool, GETting children taken away from their parents and forgetting to read a proper guideline so they actually know what ME is before they see a patient???
Trying to exclude all other diseases or will they continue as they have been doing by making the waste bin as large as they can by telling docs not to do any investigations and so, so that a lady is being diagnosed with ME, yet it turned out to be a slow working thyoid that was easily cured once the doc got the hang of the medication ie thyroxine dosage. It only took 12 years of misery, before a curious doc thought, lets do some tests.....
It is a bit like saying you go on a safari in Africa to see wild lions, but as those animals might be dangerous you first change the name to wild animal, then you change the definition to an animal that can walk and then you come home with pictures of a one inch tall penguin for that matter and you say, look I was just a yard away from this wild animal…. And see, he is not dangerous at all…
And before you write, yes I do know that you won’t see many penguins on a safari in Africa, at least I think so....
But in short this is delusional sychiatry, at its best, brought to you by the physicians who have always wanted to be a psychiatrist but didn’t dare to tell their parents that, as the general idea is that it is difficult to say with certain psychiatrists if they are the doctors or the patients ... And no this is not a joke, just go to a psycho conference and have a look at a hundred psycho boys and then you will know as well... Yes I know, there are many normal and pleasant psycho people who can still think and so, but at the KINGDOM of delusional psychiatry you won't find them, it is that simple as the Clarkman would say.
But please don’t tell professor CBT this or the physicians as they might feel haraassssseeedddd and so…
So if you do go to the Society, either to see a conference without speakers, or to protest, please be quiet, otherwise you risk being locked up in GETanomo for asking questions or should I say asking questions that any normal human being or a good doctor, who wants to know something about any disease in particular and ME in general, should ask, or is it the other way around, uhum, funny thing that malingering…
Oh and please remember that if you do go on the 28th , or you have to see a CBT fanatic for a neurologial illness at any other time, that you do what this guy is doing, the best protection against delusional psychiatrists there is,.... by far…..
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Oh, I agree with you 200%!
ReplyDeleteIf you took everyone who had breathing difficulties and put them under one umberella term 'Breathing Fatigue Syndrome,' then handed them all CBT and an asthma inhaler, some would feel better, others would suffer horribly and some would die. That's whats being done to ME, (I don't like calling it CFS).
If I had the energy and brain power, I'd start a charity called "Sue for ME" (even though my name isn't Sue) for the patients who've had their lives damaged not just by their disease but by government collusion with egotists, so they can claim a cash sum. Do you think that 250,000 people suing for cash compensation could be a threat?
It's nice to dream about something better, sigh.
Absolutely, I just used the title from the RSM site, but CFS is only used by delusionists to make people think that ME means tiredness.
ReplyDeleteSo you are absolutely right, ME is not CFS, but what do we know....
I have just been told again how lazy I am for lying down all day etc, so the CFS propaganda machinery must be working really well....
And for Chronic Breathlessness Syndrome, you wouldn't have an inhaler, you would only have CBT...
Because looking for a cure and something that works is out of the question as you know...
Dr Speedy, have you been looking at the One Click site recently? There are mytrochondrial dysfunction tests, the results of the scoring are a direct indication of the level of disability. I don't think the tests are available on the NHS but I haven't tried to find out yet for sure.
ReplyDeletehttp://tinyurl.com/32njwx
(address link too huge so shortened for convenience)
Please read the second link at the top.
I'm waiting for my ME Assessment, where it will be decided whether I'm eligible for any benefits other than Income Support, if any are granted I'll certainly be paying for this test and a few others that while they should be available on the NHS aren't because once you've had an ME diagnosis it's really hard to get any testing done.
Hope you are as well as can be today.
Great,
ReplyDeleteThanks for the link, much appreciated.
Will the test be available on the NHS??
Ask your GP if he or she is a good doc, or otherwise ask the lab, if you know the answer please let me know.
Thanks.
According to the Conference Programme, The Planning Committee for this conference included Professor Peter White, Professor Simon Wessley, Professor Kam Bhui and Professor Matthew Hotopf - so it isn't too difficult to understand why such a heavy predominance of speakers from a psychiatric/psychological background have been invited as speakers.
ReplyDeleteThe RSM has said "The RSM went through a process of establishing a planning group to discuss the content of this conference well over a year ago. The programme is now fixed and speakers have been engaged for some considerable time and it is too late to change the programme."
Dr John Scadding Chairs the Planning Committee. It would be interesting to know whose initiative this conference was and who was responsible for the selection of the members of the conference Planning Committee.
Suzy
Demonstration
Royal Society of Medicine | Monday 28th April 2008
Wimpole Street and Henrietta Street | 1pm to 6pm
Enquiries to organiser Gus Ryan creamcrackereduk@yahoo.co.uk
Information http://readmeukevents.wordpress.com