This is such a tragic story and sadly not the only sad tale.
I am in touch with a mum on Eurolyme whose daughter was diagnosed with ME/CFS and ill from age 10 until 17 eventually bedridden with swallowing difficulties. Nothing further was done to find the cause. her mum eventually took Elizabeth to the Breakspear private hospital where she was diagnosed with Lyme disease. After IV antibiotics and anti virals she regained her health. Now for the second year she is living in France skiig by day, working in the bar in the evening and partying into the night. What a success but what a sad waste of all those years. I too was mis diagnosed with ME/CFS and found to have Lyme Disease. 6 years of ill health but now after long term antibiotics nearly 100% recovered from debilitating arthritis and muscle weakness.
Thank you to Sophia's mum for all she does to raise the profile of ME/CFS.
This is such a tragic story and sadly not the only sad tale.
ReplyDeleteI am in touch with a mum on Eurolyme whose daughter was diagnosed with ME/CFS and ill from age 10 until 17 eventually bedridden with swallowing difficulties. Nothing further was done to find the cause. her mum eventually took Elizabeth to the Breakspear private hospital where she was diagnosed with Lyme disease. After IV antibiotics and anti virals she regained her health. Now for the second year she is living in France skiig by day, working in the bar in the evening and partying into the night. What a success but what a sad waste of all those years. I too was mis diagnosed with ME/CFS and found to have Lyme Disease. 6 years of ill health but now after long term antibiotics nearly 100% recovered from debilitating arthritis and muscle weakness.
Thank you to Sophia's mum for all she does to raise the profile of ME/CFS.