It has to be in by 20 July. If you feel like submitting written evidence you would have to get that in by 30 June.
If we don't get people to fill in the questionnaire- remember that 'service' could mean just a GP-we may end up with more harmful psychiatric 'help' on offer for everyone.
'You are crazy' & 'just go away' are two of the official treatments for the neurological illness ME in the UK, as sanctioned by certain members of the psychiatric profession (who just happen to be working for big health insurance companies who don't want to pay out to claimants with ME).
The third treatment is to break down your door and section you, then lock you in a mental ward where you are refused nursing care; this treatment led to the death of Sophie Mirza from ME.
this could well be the sign on the door of many a g.p. or consultant -so far as the majority of m.e. patients are concerned.
unfortunately, that kind of response from the medical profession has certainly been, and continues to be, the ongoing experience of most.
i'm always bemused to read that m.e. patients are visiting doctors in droves, - the reality at the severe end of the spectrum at least is the opposite. We can't get to surgeries / hospital appointments, and many doctors refuse to do a home visit.
those rare consultants and general practioners who read the relevant research, who have the knowledge and expertise to recognise the possibility of 'true' m.e. when they see it, and believe their patients, and who are much appreciated, have their hands tied - with all government money going to psychosocial research, they have little to offer in the way of treatment.
nevertheless those doctors often underestimate just how much it means and helps a patient to have that belief and support.
as Dr.Elizabeth Dowsett said -
'M.E. isn't a matter for conjecture, it's scientific fact.'
As a former consultant microbiologist, who worked with the late Dr. Melvin Ramsay for many years, she knows more about M.E. than most.
APPG services for ME Inquiry questionnaire
ReplyDeletehttp://www.appgme. org.uk/
It has to be in by 20 July. If you feel like submitting written evidence you would have to get that in by 30 June.
If we don't get people to fill in the questionnaire- remember that 'service' could mean just a GP-we may end up with more harmful psychiatric 'help' on offer for everyone.
'You are crazy' & 'just go away' are two of the official treatments for the neurological illness ME in the UK, as sanctioned by certain members of the psychiatric profession (who just happen to be working for big health insurance companies who don't want to pay out to claimants with ME).
ReplyDeleteThe third treatment is to break down your door and section you, then lock you in a mental ward where you are refused nursing care; this treatment led to the death of Sophie Mirza from ME.
this could well be the sign on the door of many a g.p. or consultant -so far as the majority of m.e. patients are concerned.
ReplyDeleteunfortunately, that kind of response from the medical profession has certainly been, and continues to be, the ongoing experience of most.
i'm always bemused to read that m.e. patients are visiting doctors in droves, - the reality at the severe end of the spectrum at least is the opposite. We can't get to surgeries / hospital appointments, and many doctors refuse to do a home visit.
those rare consultants and general practioners who read the relevant research, who have the knowledge and expertise to recognise the possibility of 'true' m.e. when they see it, and believe their patients, and who are much appreciated, have their hands tied - with all government money going to psychosocial research, they have little to offer in the way of treatment.
nevertheless those doctors often underestimate just how much it means and helps a patient to have that belief and support.
as Dr.Elizabeth Dowsett said -
'M.E. isn't a matter for conjecture, it's scientific fact.'
As a former consultant microbiologist, who worked with the late Dr. Melvin Ramsay for many years, she knows more about M.E. than most.
http://www.meactionuk.org.uk/Organic_evidence
_for_Gibson.htm
http://www.lulu.com/content/paperback-book/missed-diagnoses-myalgic-encephalomyelitis-chronic-fatigue-syndrome/6590958
j.