Doctor Speedy and ME in search of medical honesty
Saturday, September 24, 2011
GET (graded exercise therapy) is torture for ME patients and directly contravenes the do NO Harm principle of the GMC
The recent PACE trial declared GET safe, but they used the Oxford criteria, which selects people with fatigue caused by depression or burnout and excludes ME patients.
GET is not only very dangerous for people with ME, but many of us have had severe relapses caused by this so-called treatment to the point that many of us, including myself, have been made bedridden 24/7 by GET.
Anybody who knows anything about ME knows that GET equals torture for people with ME.
So GET is not only torture for ME patients, and doctors shouldn't torture patients as you know, it also directly contravenes the do no harm principle of the GMC.
Now I understand that as I am a doctor with ME, you might not believe my account of GET, so let's just have a look at some recent reviews of CBT and GET for ME. But may I remind you first that PACE trial's Prof White has always claimed that these treatments cure at least 25% of people with ME and the Dutch/Belgian CBT doctors have claimed for years that they cure 70%.
Prof White's PACE trial found that no one gets cured by CBT and GET.
The review by Prof Maes showed that these treatments made people worse,
a recent Spanish review again showed that these treatments made people worse
and then there is the recent review of these treatments in the five reference centres in Belgium. The Belgian Prof who set up these centres, is part of the we cure 70% group, yet this review showed again that these treatments make ME patients worse.
The Belgium Prof responded by saying that that is because the expectations of the patients were too high. If a surgeon uses a treatment and claims that he cures 70%, because he has selected his group by using Oxford like criteria, so not selecting the patients he should have selected, and then several reviews show that patients are made worse, then obviously his treatment would be abandoned. The same should obviously finally happen with CBT and GET for ME.
So to ... Read more>>
See also: Jan 2011, Spanish study shows that CBT and GET make things WORSE in ME/CFS !!!
See also: Journal for Psychotherapy 2011: CBT and GET are ineffective and potentially harmful for many ME/CFS patients
See also: European Parliament approves protective system against CBT psychiatrists
See also: Pacific Labs in California (Snell, Stevens et al): it is dangerous to put patients with M.E. through a graded exercise program
You should add the research by Pacific Labs in California (Snell, Stevens et al) that proved post-exertional fatigue is very real with two-day testing of patients with either CFS (Fukuda 1994) or ME/CFS (Canadian 2003) or both (can't remember) - reconditioned controls scored the same on both days, whereas the scores of high-functioning patients dropped in half on the second day, proving they cannot utilize oxygen or clear carbon dioxide normally during what should be "aerobic" exercise. Also, the Lghts in Utah have work showing changes in blood when PEC/ME's exercise that is very abnormal. Both studies suggest that it is dangerous to put patients with M.E. or CFS (Fukuda 1994) through a graded exercise program without keeping careful tabs on what their exercising metabolism looks like - and both offer an explanation for WHY something that FEELS dangerous to patients really IS dangerous to patients.
ReplyDeleteThx Mary,
ReplyDeleteadded: Pacific Labs in California (Snell, Stevens et al): it is dangerous to put patients with M.E. through a graded exercise program
Please check your Pacifici labs Snell Stephens link Dr Speedy
ReplyDeleteHope you are having a half-way decent day Love
Another Severe ME patient
OOPS !!!
ReplyDeletePacific Labs in California (Snell, Stevens et al): it is dangerous to put patients with M.E. through a graded exercise program