Anonymous said...:
I would just like to ask all those from "research/scientific community" to please watch Natalie Boulton and Josh Biggs' ME film "Voices from the Shadows".
It is available for live streaming, free of charge online from now until 10/30/11. The film is just over an hour and I think it may a useful tool to understanding where the patients' mistrust of the medical establishment/scientific community is coming from and why their is such allegiance to people who "get it" like Dr.'s Deckoff-Jones and Mickovitz.
I would also hope it would help to explain why the tone of Abbie's blog is so offensive and that it would encourage researchers, scientists, doctors, commentators, etc., to take some responsibility for building trust with the patient community (rather than being dismissive), particularly if they are so certain that they can provide answers.
The film can be accessed for live streaming at http://mubi.com/festivals/mill-valley
It will not be downloadable. -MSD
See also: A big thank you to Dr. Judy Mikovits
See also: Harvard Medical School: EEG spectral coherence data distinguish chronic fatigue syndrome patients from healthy controls and depressed patients
See also: The putative agent of ME/CFS can be transferred to monkeys
See also: Almost 5% of ME/CFS patients contracted ME/CFS from a blood transfusion
See also: Cerebrospinal fluid profiles can differentiate between Lyme disease, ME/CFS and healthy controls
See also: The main characteristic of ME is an abnormally delayed muscle recovery after doing trivial things, if you don't have that, you don't have ME See also: GET (graded exercise therapy) is torture for ME patients and directly contravenes the do NO Harm principle of the GMC
tried to watch the film, but couldn't access it. message appeared saying it wasn't available in my area ?
ReplyDeleteMany thanks for this link. Havejust watched film. Powerful, evocative, accurate. Am bedbound many decades with severe ME. If this were not my reality too, it would be unbelievable.
ReplyDeleteNot available in UK. It might be good to alert patients to that. I just wasted a load of time trying to sign up and then watch. Not a happy bunny.
ReplyDeleteI can't even comment on this! Dr Speedy I am very disappointed in you.
ReplyDeleteis there any possibility to watch the film in europe? Proxy doesn´t work.
ReplyDelete