"If you wish to raise further concerns directly with the team investigating the issue, please email firstname.lastname@example.org and put 'Medical trial on children with ME' ...in the subject line. You can use the following template letter or use part of it to build your own:
For the NSPCC team investigating the 'SMILE'/Lightning Process medical research on children with ME.
The protocol for this medical research states that is has been granted ethics approval (despite the treatment in question not having been researched on adults first) because “CFS/ME in children has a different outcome to adults and the treatment is different therefore research in adults cannot be extrapolated to children.”
This contention appears to be based on three UK psychiatric research papers (see 1,2,3 below) and ignores any and all UK and international biomedical research which indicates that ME is the same in children as in adults."