"Providing a voice for those severely affected with Myalgic Encephalomyelitis
The name 'Lost Voices’ refers both to the fact that people who are severely ill with ME are generally not in a position to make themselves heard, and also to the way that the prejudiced denial of ME - as an ‘aberrant belief’ rather than a devastating physical illness – has meant that often others are incapable of actually hearing and seeing what is being said and shown - our voices drop into a void.
Art has the power to move people, and combined with documentation 'Lost Voices’ brings the situation more vividly to life.
'Lost Voices’ is primarily written by people affected by severe ME- whether as sufferers, carers or families - those very severely affected – house-bound or bed-bound - are represented.
The book is a high-quality, A4 landscape size with a laminated card cover with pictures, mostly in colour.
We have also incorporated a section of informative material on ME written by experts such Mrs Annette Whittemore (of the Whittemore Peterson Institute), Dr Leonard Jason, Dr John Chia and Dr Vance Spence, and also contributions from other charities.
Please use the order form to order Lost Voices:
• £8 for UK customers
• £9 for European customers
• £11 for outside Europe "
Sunday, November 30, 2008
Saturday, November 29, 2008
Friday, November 28, 2008
Thursday, November 27, 2008
Tuesday, November 25, 2008
Monday, November 24, 2008
Sunday, November 23, 2008
Friday, November 21, 2008
DO NOT expect this much firework from the NICE JUIDICIAL REVIEW.
Just have a look at the Alzheimer Judicial Review and you will get my point. Too much money power and egomaniacs involved and careers at stake.
And no one cares about patients who are crippled or bedbound as they do not see us anyway.......
And the RSS Feed for my Blog lights up on Internet Explorer on the top right.
I DO NOT know how to put it elsewhere on my BLOG.
Anybody who can help ????
Thursday, November 20, 2008
Tuesday, November 18, 2008
Panel finds widespread Gulf War illness caused by exposure to toxic chemicals, OOPS professor Wessely ...
By: ANNE USHER/Cox News Service
16 November 2008
WASHINGTON - At least one in four U.S. veterans of the 1991 Gulf War suffers from a multi-symptom illness caused by exposure to toxic chemicals during the conflict, a congressionally mandated report being released Monday found.
For much of the past 17 years, government officials have maintained that these veterans -- more than 175,000 out of about 697,000 deployed -- are merely suffering the effects of wartime stress, even as more have come forward recently with severe ailments.
“The extensive body of scientific research now available consistently indicates that ’Gulf War illness’ is real, that it is the result of neurotoxic exposures during Gulf War deployment, and that few veterans have recovered or substantially improved with time,” said the report, being released Monday by a panel of scientists and veterans. A copy was obtained by Cox Newspapers.
Gulf War illness is typically characterized by a combination of memory and concentration problems, persistent headaches, unexplained fatigue and widespread pain. It may also include chronic digestive problems, respiratory symptoms and skin rashes.
Two things the military provided to troops in large quantities to protect them -- pesticides and pyridostigmine bromide (PB), aimed at thwarting the effects of nerve gas -- are the most likely culprits, the panel found.
The Research Advisory Committee on Gulf War Veterans’ Illnesses, created by Congress in 2002, presented its 450-page report to Secretary of Veterans Affairs James Peake on Monday. It said its report is the first to review the hundreds of U.S. and international studies on Gulf War vets since that have been conducted the mid-1990s.
In a 2004 draft report to Congress, the panel said that many Gulf veterans were suffering from neurological damage caused by exposure to toxic chemicals.
Monday, November 17, 2008
Saturday, November 15, 2008
Thursday, November 13, 2008
Monday, November 10, 2008
ME Research UK Christmas cards for 2008 are now available. This year’s collection consists of ten attractive designs, all at very reasonable prices, and all profits will go towards vital ME research.