KARL’s Story by Mualla Akinci McManus:
Karl McManus was bitten by a tick in July 2007 on Sydney’s Northern Beaches.
A week later he developed flu-like symptoms but, due to a lack of knowledge about Lyme disease in Australia, the tell-tale signs and potential seriousness of the tick bite were overlooked.
Five weeks later Karl experienced more of the classic symptoms of Lyme disease and also began to lose dexterity in the fingers of his left hand and to get muscle wasting.
In November 2007 Karl was misdiagnosed with multi-focal motor neuropathy (MFMN) and given an immuno-suppressive agent which worsened his condition, so the treatment was stopped.
It was not until April 2008, when we sent his blood to a US laboratory and his tests came back positive for Lyme-disease bacteria, that our suspicions were confirmed.
However, Karl could not find a doctor in Australia who would care for and treat his neuroborreliosis.
Without proper monitoring he continued to deteriorate.
Karl passed away suddenly on 14 July 2010.
His decline and death was due to a refusal by the medical system to accept he had Lyme disease and treat him accordingly.
He did not want anybody to suffer like him ever again. Read more at karlmcmanusfoundation.org.au
Karl McManus Foundation on facebook