Tuesday, July 29, 2008

The State of ME

Some say that professor CBT cried his eyeballs out after reading this book, others say his wife started beating him for telling porkies for decades, but all we know is that the reviews are super and that I haven’t read NMJ’s book, The State of ME.

Sunday, July 27, 2008

Cognitive Behaviour Therapy or CBT for dummies lesson ONE...

Today we will start with our latest learning module about CBT. And what better way to start than with a very simple and basic test to GET the young up and coming CBT fanatics into a NICE rhythm.

It won’t take long, and you will see, even professor CBT will need lesson ONE to GET something right.

The question is very simple, I will show you a short video and you as new born CBT fanaticos have to answer a simple question. No it is not about ME, as CBT people don’t know anything about that disease anyway.

As you might remember, knowledge slows the process down for them and their GOBSART friends. And in the case of CBT for ME that is porky telling money grabbing business.

And the longer it takes, the less money they earn for even beating the Clarkman when he uses the principles of CBT and entertains us by telling that a BMW M3 is using less fuel than a Toyota Prius, that is a car with a tiny, normal engine and an additional electric one with almost no horse power at all, and that car is running on diluted water or something …..

Anyway, well worth watching this short episode of TOP GEAR with Captain Slow, my hair is now slong I can sit on it, aka James May and the I will never drive a fast car and crash again Hammond little stylish fellow.

So here is just that video as an appetiser so to speak before we GET down to some serious business:

Now, when the following video starts, you will see a big fat Aussie V8 coming around the corner, but it looses a wheel.

No we won’t talk about false illness beliefs from the driver that he has lost something but that professor CBT denies it as he does with everything else…..

The question is pretty simple and straightforward. What happens to the wheel and how many sessions of CBT do you need to predict the right outcome of this video??

a. 12-16
b. 48
c. 93.3
d. 8,5 million

So just watch the video and give ME the right answer professor CBT and everybody else ….

Right, now that was easy wasn’t it?

You would never have guessed the outcome and given ME the right answer, just like professor CBT and his gang never get their diagnosis of ME, or CFS as he wants to call it, right.

If you don’t believe me than watch this space as I will show you something amazing, but it will take some time before it is ready.

Until then, good day and stay away from CBT fanaticos.

Friday, July 25, 2008

Monday, July 21, 2008

Cochrane Review of CBT shows: it is useless …

"Cognitive behaviour therapy for chronic fatigue syndrome in adults (Review)"
By: Price JR et al, Department of Psychiatry, University of Oxford,Oxford, UK. jonathan.price@psych.ox.ac.uk

“Chronic fatigue syndrome (CFS) is a very common and disabling condition, in which people suffer from persistent symptoms of fatigue that are unexplained.”

“This review aimed to find out whether CBT is effective for CBT, both as a standalone treatment and in combination with other treatments, and whether it is more effective than other treatments used for CFS.”

“The review included 15 studies, with a total of 1043 CFS participants. The review showed that people attending for CBT were more likely to have reduced fatigue symptoms at the end of treatment than people who received usual care or were on a waiting list for therapy, with 40% of people in the CBT group showing clinical improvement, in contrast with 26% in usual care.

At follow-up, 1-7 months after treatment ended, people who had completed their course of CBT continued to have lower fatigue levels, but when including people who had dropped out of treatment, there was no difference between CBT and usual care.”

“CFS has had many names in recent decades. These include Royal Free disease, Iceland disease, neurasthenia, myalgic encephalomyelitis (’ME’), and post-viral fatigue syndrome.

All these appear to describe groups of patients with a similar problem, that is, persistent medically unexplained fatigue which causes disability and distress. The term CFS has been adopted and clearly defined in order to foster research on this common problem.

Opinions regarding the cause have tended to focus on either mainly physical or mainly psychological explanations."

So This study shows a few things:

1. As we have said many times before the CBT gang selects people with fatigue, not with Chronic Fatigue Syndrome or ME.

2. As people with ME do NOT suffer from fatigue this has clearly shown that all these CBT studies are basically creative storytelling articles from professor CBT and his friends.

3. And even for FATIGUE, CBT is completely useless !!!!

4. Because usual care for fatigue means a HOSTILE doctor who doesn’t believe a word you say and treats you accordingly, so if CBT is as effective as that than the psychiatrists are doing an even lousier job than we have been saying and we are simply pouring millions of pounds down the CBT drain. But again, we have been saying that for years.

5. Neurasthenia and hysteria were terms used for MS, which is now a proper disease, so are MS and ME the same than?

I certainly don’t think so, but it also implies that both are neurological illnesses, which we know anyway but this fact is IGNORED all the time by the CBT gang.

Furthermore, Neurasthenia is a pschiatric disorder and ME and CFS are neurological disorders. ME since 1969, CFS since 1992. So absolutely right, just a minority detail.

6. CFS has been “clearly defined”. Now on what planet do these CBT guys live??

CFS has been clearly defined to include as MANY patients with psychiatric based tiredness and (ALMOST) all patients with physical signs and symptoms have been EXCLUDED. Wakey wakey guys.

And Dr Ramsay, what is the "sheet anchor" of diagnosing Myalgic Encephalomyelitis (ME):

“Muscle fatiguability. Even after a minor degree of physical excercise, 3 or more days may elapse before full muscle power is restored. This feature is unique and is the "sheet anchor" of diagnosis.”

This feature however doesn’t feature AT ALL in all the psycho criteria and their so called CFS or ME as defined by the CBT gang.

So they actually talk and write about Chronic Fatigue and not the Syndrome or ME all the time. Again, just a minority detail …..

If you want to read the whole review, then you can download that HERE …………

And in case you want to Drive a Millionaire? Than just have a look at the following picture of a Swedish supercar, more details are available here……

A heck of a lot better than silly CBT. Thanks guys.

The basics of CBT ...

Tuesday, July 15, 2008

Simon Wessely, no not the professor, and why his blog was taken down ...

I have just received a number of emails etc about Dr Simon Wessely and his Blog: Simon Wessely I Know It All, which was clearly about a GP with ME.

I always thougt the UK was a democratic country and Dr Simon Wessely, the GP with ME, just used his freedom of speech. Nothing more and nothing less.

However, his Blog was closed down without any forewarning just to show you what sort of people the CBT gang really are.

And the reason is quite plain and simple. No one is allowed to tell the world that CBT is just an utter waste of time, money and resources for neurological illnesses like ME.

But the CBT gang risk losing MILLIONS of Pounds if the Politicians and the MRC for example find out.

They tell me the picture is "just" ONE MILLION POUNDS, and all EIGHT and a HALF million for ME Research from the MRC has gone where????

Yes, to silly CBT......

Anyway, Simon has now got a new Blog.

A Speedy recovery, Simon and everybody else......

Sunday, July 13, 2008

Luminescentfeeling explaining the truth behind silly CBT

Someone was very kind to send ME a link to the following video by luminescentfeeling.

It quotes the medical so called professionals who make sure that politicians and (young) doctors are steered away from the TRUTH and what a debilatating disease ME is.

And why it is so important to properly diagnose it, as for many other illnesses, that now come under the BIG CFS UMBRELLA , there is actually a CURE; if only we would find the hypothyroidism, the Lyme's disease etc,

And a CURE or PROPER TREATMENT sounds a whole lot better I can assure you............... than just plain SILLY CBT for a neurological disease that ONLY HELPS the CBT BRIGADE earn more money and is just as helpful for ME as watching a hibernating bear .....

So watch this video in horror and think HIPPOCRATIC OATH .....

Tuesday, July 8, 2008

Comment policy and giving a Fukuda ...

I just had a few emails with some interesting comments. In the video on 6.7.2008 Jodi said something like:

"For the benefit of all those millions of people with M.E., the bogus disease category of CFS must be completely abandoned."

Now this obviously sparkled some debate. But if you think about it, it is true thanks to psychiatric trivialisation and denial.

You see, CFS is defined by the Oxford criteria, tiredness only, the CDC or Fukuda ones with tiredness and 4 other symptoms out of a list of 8 and the NICE ones with tiredness and a headache or sore throat.

So in that mix you will find patients with physical illnesses but also patients with mental health problems like depression and burn out.

And I must say, after a few years in bed, with in my case ME, I wish I had a depression or burn out. I know those are not NICE once either etc, but at least for many of those problems we can actually do something and cure them.

Yet in the case of physical CFS and ME we can only offer a therapy which is as effective as watching paint dry, better known as CBT.

Even psychotherapists are now attacking CBT when used for depression:

“The belief that cognitive behaviour therapy is the most effective way of treating depression is wrong, claim leading psychotherapists.” By: Jeremy Laurance, Health Editor, The Independent on Tuesday, 8 July 2008

The other part of one of the comments I liked was:

My partner just popped into the bedroom and said:

"I don't know why you are getting so upset and making yourself ill. Who gives a flying f**k what some doctor says in a blog? "

Please tell your partner it is not a flying f**k but a flying FUKUDA. And furthermore it is important to give a FUKUDA because as we all know there are not that many docs who actually know that these illnesses are debilitating etc.

So thanks for your comments.

Oh and one more thing, I don’t moderate comments, I just block spam. So sometimes it takes a while before the comments reach me or my brain or internet provider is not up to logging on.

And the last thing, thanks Jill for your splendid comment, much appreciated, if I could walk I would frame it and put it on my wall !!!!!!

Monday, July 7, 2008

Want proof what CBT can do for you ...

I just had a comment that said that I do not believe in CFS. Well I do, it is just that it is something totally different from ME.

It is like seeing a patient with Chest pain.

And you tell him he hasn't got a heart attack....

Doesn't mean there is no problem, he just has a pulmonary embolism.... which is something totally different....

I also think that way too many people are diagnosed with CFS by doctors who don't know what it is and get their knickers in a twist as soon as they hear CFS.

Just read the comments on this BLOG and you will see my point. Many people had CFS for years until a doc woke up and did a Thyroid test or checked for Lyme's disease.

As you might know, only 25% of people get the typical bull's eye rash with Lyme's disease.

So yes, I know very well that CFS exists, but it is just not the same as ME and yet that is what the psycho ramblers are trying to make us believe..........


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