The CFS Patient Advocate:
Many of the participants of the Blood Study group advisory committee meandered off to have a little dinner and feel good about themselves. Their self-assessment mirrors a comment overheard recently in a NYC coffee shop:
"I feel good about myself and I think I do a good job."
The rest of us go back to our life of illness or illness support. It is a grim life, made more difficult by having to go back to confront illness reality after a day with these FDA losers.
It is this disconnect that is really irritating - the disrespect for this illness that individuals like Coffin and Stoye display publicly.
They are playing their little games, disguised as science - and their successes in their careers come at the expense of patients.
They do not give a shit.
This is what I dislike. It is the contempt and the disregard and the ignorance of the consequences of their actions. It is in this way that they are modern people - self-pleasurers.
On this December 20th, a story from November 2009 has taken center stage and has become a "realization".
A year ago a well-known cancer virologist was approached in the halls of the NCI by another virologist and advised to "distance himself from the WPI" - that "they (unknown elements) were going to take out the WPI". Today ... Read more>>