“Justice will not be served until those who are unaffected are as outraged as those who are.” ~ Benjamin Franklin
I am bed-bound, unable to sit up and unable to talk. It is extremely difficult for me to eat, I have to have bedbaths and in order to go to toilet, I have to slide onto a commode beside my bed.
I'm sure that there are many, many people in the same situation throughout the world as a result of various diseases or tragic accidents. They are treated with respect and compassion by doctors. Unfortunately, the disease that has caused my predicament is Myalgic Encephalomyelitis (M.E.).
Despite the severity of my symptoms and 24/7 intense suffering, I am treated like dirt by doctors.
They have been dismissive, arrogant, rude, uncaring and neglectful. I like to believe the best of people, so I put their behaviour down to their ignorance of M.E. They are simply following their out-of-date knowledge and training.
As far as I understand, NICE (National Institute of Clinical Excellence) guidelines prevent doctors on the NHS from treating M.E. patients in a biomedical manner, despite evidence of abnormal test results. Professor Anthony Komaroff (of Harvard Medical School) confirms “There are over 4,000 papers on the biomedical nature of ME/CFS…spanning over 60 years.” So it beggars belief that most doctors still believe that this is a psychological disorder. But it is not surprising since the psychiatrists who have the government's ear have vested interests in the health insurance industry. The Countess of Mar has slated this corruption in The House of Lords: http://www.meassociation.org.uk/?p=582