Chalpat Sonti, watoday.com.au:
There are no reliable statistics as to how many people die from ME/CFS, with most fatalities put down to organ failure. Her mother and full-time carer, Carol Adams, puts it bluntly.
"Is my daughter going to die because we can't give her the medicines she needs?" she said.
"It breaks my heart that she's lost her life. I've been told Theda's at the same level AIDS sufferers are (at) two weeks before they die."
See also: ME sufferer Theda Myint locked up in a psychiatric unit