Wednesday, October 26, 2011
ME IS JUST FATIGUE, RIGHT? WRONG
Message from Jane Colby
25 October 2011
... 'ME IS JUST FATIGUE, RIGHT? WRONG'
and:'Research showing ME is a physical disease'
If you've been reading my tweets, you'll have seen that Mark has now placed the second poster in our awareness raising series prominently on our website.
The message reads: 'ME is just fatigue, right? WRONG'.
The striking photo features one of our members, tube-fed because she could not at that time eat for herself. We have all read so much nonsense about ME in the press this year. It is time to tell it like it really is and to forward this link far and wide.
See the poster here: http://bit.ly/tt-wrong
The good news is that, after she and her family declined graded exercise treatment and managed her illness carefully, avoiding any treatment 'programme', this little girl has come through the worst of the illness and grown into an independent-minded, academically gifted young woman with a strong sense of justice for children with ME.
How many times do I hear a similar story of improvement through withdrawing from misguided if well-meant treatment? It confirms all that Dr Betty Dowsett, Dr Alan Franklin, Dr Nigel Speight and Byron Hyde MD have always said. And it reflects my personal experience of severe ME.
RESEARCH SHOWING ME IS A PHYSICAL DISEASE
On the reverse of our poster we have summarised the 2010 Dundee research into children's blood, showing evidence consistent with persistent viral infection. As most of you already know, Tymes Trust co-funded this research.
The headline reads: 'Research showing ME is a physical disease'.
We don't go along with the fashion among some doctors and researchers who tend to denigrate the very concept of a 'physical' disease. Such professionals prefer to emphasise instead that all disease, including ME, is a mixture of the physical and psychological. As I said when I was on the panel at the MEA Question Time in Huddersfield recently: 'Try telling that to someone with a broken leg.' No-one should let academic arguments obscure their common sense.
It is vital that researchers continue providing evidence for the presence of viruses that are known to attack people with ME. And it's also vital that when such evidence has been published, we all continue to keep it at the forefront of the public's mind.
Read it here: http://bit.ly/tt-phys
Poster leaflets cost £3.35 for a pack of 10 inc p&p. You can display
the poster or use it as an information leaflet. It can be folded either way - it arrives image side out for impact, or you can fold it the other way if you want to draw a doctor's attention to the research information.
Please forward this message to anyone you think would like to know.
All good wishes, and don't forget that if you need help, our ME-friendly Advice Line Team is on 0845 003 9002.
Jane Colby FRSA
The Young ME Sufferers Trust
PO Box 4347, Stock, Essex, CM4 9TE
Tel: 0845 003 9002
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See also: The main characteristic of ME is an abnormally delayed muscle recovery after doing trivial things, if you don't have that, you don't have ME