The name ‘Lost Voices’ refers both to the fact that people who are severely ill with ME are generally not in a position to make themselves heard, and also to the way that the prejudiced denial of ME - as an ‘aberrant belief’ rather than a devastating physical illness – has meant that often others are incapable of actually hearing and seeing what is being said and shown - our voices drop into a void.
The project is particularly intended for people affected by severe ME- whether as sufferers, carers or families.
The aims of the book and exhibition are –- To provide an opportunity for people who are usually invisible and unheard to speak for themselves, so that their situation can be seen and understood more clearly.
- To show evidence of the devastating impact this physical disease has on individuals and their carers and families.
- To bring to more public notice the plight of ME sufferers.
- To help change a widespread lack of comprehension based on general misinformation, vague definitions, guessed numbers and statistics, to the development of empathy and concern for those who are so ill.
- To educate the medical profession, the public and others such as wider family.
- To encourage a sense of community among ME sufferers and those supporting them.
For more info click here ..., or go to the InvestInME website for the whole article...
Contact details:
Email- mebook@investinme.org
or click here for sending comments/enquiries.
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