A message from Annette Whittemore:
The Invest in ME Conference just ended a few hours ago. This conference brought new and exciting ressearch to ME that is soon to be published. Dr. David Bell discussed how the patients that he saw as children are now adults around 40 years old. Several have cancer, while others are still severly ill, but the majority are coping and say they are well but are actually still living with CFS. Dr. Demeirlier continues his important XMRV research, in Belgium and around the EU, finding many of the sickest patients positive for the retrovirus. Dr. Mikovits showed more "footprints" of XMRV infection from the patient's immune system data and described how XMRV seems to act more like HTLV than HIV. Dr. Bieger, a delightful iimunologist from Germany, is doing exciting work with XMRV and EBV. The rest will have to wait until the conference DVD is completed.
Discussions following the conference were very lively as those in the audience stated their frustration with the British medical/political establishment at not having adequate medical care in the UK. Howeveri, all in all, it was the best conference to date. I am overwhelmed with emotion over the expressions of thankfullness for all that the WPI is doing to bring awareness of this disease to the rest of the world. I wish we could all get together in one place to share stories and meet face to face. I realize how connected we've become, in our quest to find the answers to this devastating disease. I'll be flying home tomorrow while Judy travels to Ireland to give another presentation and more hope to those who suffer. Goodnight all!