from Invest in ME
Dear Sir Liam,
The 12th day of May is recognised (celebrated would be an inappropriate term) as ME Awareness Day in many countries. It is the focal point of what has become ME Awareness Month – a month dedicated to raising awareness of myalgic encephalomyelitis (ME or ME/CFS).
As you know Invest in ME is a UK charity that was created by families of children with ME or persons who suffer from ME themselves and who were appalled and frustrated at the lack of action from government, departments of health, healthcare organisations, charities and individuals – all purporting to service or represent people with ME yet seemingly doing little or nothing.
Since it was formed Invest in ME has organized and hosted an annual International ME/CFS conference in Westminster, London, with the aim of educating healthcare staff, the media, politicians, ME support groups and people with ME of the biomedical research which is taking place.
On 28th/29th May 2009 we are holding our fourth conference.