M C S A NEWS:
Myalgic Encephamyelitis / Chronic Fatigue
Syndrome (ME/CFS) researchers
have reportedly received death threats
from people with ME/CFS for their continued
research into possible psychological
causes of ME/CFS.
The psychological research has continued
for years despite the lack of evidenced
for a psychological explanation
and ineffectiveness of psychological interventions.
''People do however have a justifiable
complaint about is that there has been
very little, or almost nil, Governmentfunded
research into the biomedical aspect
of this illness,” says Dr. Charles
ME/CFS patients believe that this downplays
their symptoms and disease. Further,
it prevents research into the actual
cause and potentially helpful treatments
for a devastating disease triggered
by infections that are not yet fully
One researcher, Simon Wessely, has
steadfastly insisted ME/CFS is a form
of neurosis, despite the fact that psychological
treatment continues to
show no improvement in patient outcome.
In fact, many people with ME/
CFS experience deteriorating health
after psychiatric interventions.
In the United Kingdom, victims of ME/
CFS who have been forcefully hospitalized
in a psychiatric institution frequently
experience worsening of their
condition. There have also been
cases in which the victim died due to
denial of medical care because their
ME/CFS was mistakenly believed to be
Wessely’s comments seem intended to make the patient with ME/CFS sound as
though they ‘want’ to be sick to lend truth to unproven theories of neurosis.
They fail to explore the fact that people with any illness want to know the truth
about their condition, irregardless, so they know what they are facing and can
make the best possible health care decisions.
“The real psychopathology is in denial of the truth, the ultimate psychotic state
of pretending that a real medical condition can simply be ‘thought’ all better by
changing ones frame of mind,” says Lourdes Salvador of MCS America.
Researchers like Wessely fail to take into account that ...
Researchers like Wessely fail to take into account that people with ME/CFS
would be better off knowing what was causing their illness so that researchers
could focus their attention on helpful treatments and advances in medicine.
People afflicted by this disease want nothing more than to get their life back.
To do that, research needs to focus on what is really going on at a biological
level. The only apparent benefit of continued research into psychiatric
causes for ME/CFS lies in the pocketbooks of psychiatrists
who get paid to administer ‘care’ to these patients for a lifetime of
misery with no improvements.
Any further research into wildly unproven psychological theories is
on thin ice. If only it was that simple, it would be easily cured! But,
all the happy pills and talk therapy in the world won’t kill a poorly
understood and inadequately researched virus.