Wednesday, November 24, 2010
CDC To Be Fairer on ME/CFS? Don't Believe A Word Of It!
By: The Patient Advocate
The Patient Advocate was reading the NY Times Science section this morning when he noticed the front page article on Dr. Ian Lipkin. The PA had seen the online version yesterday but was pleased to see this in the real paper.
The first question that came to the Patient Advocate's mind was - why this extensive profile of Dr. Lipkin and why now?
It was only when the PA got to the last paragraph of the article that the PA understood what this article is about.
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Labels:
CFS/ME,
CHRONIC DISEASE,
Coping,
DIAGNOSING,
GUIDELINES,
Health,
RESEARCH,
Secondary Gains,
XMRV
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2 comments:
Hello,
I have a inquiry for the webmaster/admin here at niceguidelines.blogspot.com.
Can I use part of the information from your post above if I give a link back to your website?
Thanks,
James
Hey Mr. P.A. As Usual thanks for your prescient observations, and intelligent insights. My question is this: If Dr. Ian Lipkin is the nation's top VIRUS HUNTER, than why wasn't he sent a bunch of vials of blood from the EARLY CEBV (Chronic epstein Barr virus) victims like us from the mid 1980's? He was around San Francisco, when HIV was raging, and they were finding weird cancers like Kaposi's Sarcoma, and other illnesses alongside HIV that were killing of AIDS patients, and all of us CEBV patients were often bedbound earlier and longer than HIV patients with our chronic sore throats and swollen glands. If it looks like a duck and walks like a duck? There were close to a million of us out there so sick that we could barely feed ourselves. Why wasn't Tony Fauci, and Billy Boy Reeves looking for the TRUE virus causing all this mess back then? and why did they try to Kill Elaine DeFreitas's work instead of supporting her with a VIRUS Hunter like Dr. Ian Lipkin back then? as you describe so accurately, that a retroviral immunologist like Dr. Mikovits came in the back door and Dr. Silverman, both were searching for viruses in certain forms of prostate cancer...and actually found XMRV in so called "CFS" and M.E. patients almost by accident. It is the perseverance of Mikovits and Dr. Ila Singh, two WOMEN of unimpeachable integrity, who teased out and actually grew REAL virus, not just fragments...and later Dr. Alter of the NIH and Dr. Shyh Ching Lo (of gulf war veterans mycoplasma fame) to actually REPLICATE the work of Lombardi and Mikovits..and the government wags at the CDC soiled their underpants, they were so scared...and they took another six weeks to mess up the NIH results to make it look like they just found "FRAGMENTS" of MLV's, when they REALLY WERE ABLE TO REPLICATE THE WORK OF LOMBARDI ET AL!!! Now, it was actually, Dr. Collins, the NEW Head of the NIH who told the lazy Tony Fauci to get off his keister and put Dr. Ian Lipkin in charge, (30 years too late for far too many of us!) to see if Lipkin, with the backing of the entire medical establishment can tease out the same results of Lombardi, Mikovits and Singh! Only time will tell if the boys can catch up with the girls on this one!
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