Another simple email a day campaign: Release the BWG XMRV Phase 2 Results Now
What/Why
The Blood Working Group has 4 "trials" with XMRV in ME/CFS patients that they are running. Phase I was to set up the four labs of which the WPI, CDC, FDA and another one tested their ability to find XMRV in spiked samples. That one was completed a couple months ago.
Phase II is how to find XMRV in ME/CFS patients and it will define the "gold standard" that is used from here on out. The protocols that are necessary in order to find XMRV in patients include handling, storage, primers, assays - the whole shebang.
The Phase II portion should have been finished and the information released no later than the first week of November. They talked about it at the First International XMRV Conference in September, indicating they almost had it worked out and then. At the October CFSAC meeting they promised to release the information as soon as it was ready. The available information indicated the results have been released to a portion of the scientific community but not to the patient population or researchers at large.
Since the release of the information to the patient population would allow us to compare the "correct" way to find XMRV to all the other "ways" that people are trying to find XMRV then it's pretty important that the information be available to us. Plus, it settles the "contamination" question once and for all.
The release of this information is critical to patients, researchers world-wide as well the general public. Ask them to make good on their promise.
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