By Peggy Munson:
This past year, I was abandoned and left to die a terrible death from ME/CFS unable to speak, move, bathe, or even breathe on my own, with barely any care, dirty and dying with ants crawling on me, desperately begging for help using a TTY phone when I scarcely had the energy to type with the keys.
I could not tolerate any stimulation including sound, vibration, phone, friends, TV, radio, music, touch (stimulation would induce seizures, muscle fasciculations, increased shortness of breath, drops in blood pressure, and other neurological symptoms that grew increasingly severe).
I was generally too ill to reach for things at the end of my bed and eating was a chore because it took strength I didn’t have, to chew, and I would be incredibly winded from that effort or from even turning my head to the side to shovel the food in. The conditions were atrocious.
I had failed a tilt table test and showed immune deficiencies in the hospital, and had Dr. Sarah Myhill’s mitochondrial testing in June which showed dramatic abnormalities, and yet nobody was going to save my life, Read more>>