Wednesday, February 2, 2011

Doctors do NOT understand the real nightmare of this disease

By CFS Central:

The researchers of the new study may all be well meaning, and from my Q and A with Dr. Michael Antoni, the study's corresponding author, I believe he is sincerely trying to help patients, but his agenda isn’t the same as patients’ agendas.

He doesn’t understand the real nightmare of this disease or he'd know that cognitive behavioral stress management (CBSM) is not terribly helpful.

CBSM is something most patients learn over time. They learn, among other things, to pace themselves, to distract themselves, to seek support, and to break an overwhelming project down to bite-size pieces.

Are those techniques helpful? Yes.

Do they get patients back to work or school? No.

Do they enable patients to socialize with their friends and family regularly, or lead normal lives? No.

When Antoni says that CBSM is used on HIV/AIDS and cancer patients with success, I say those patients also have retroviral and chemotherapies, and that is where the real benefits come. CBSM or cognitive behavioral therapy or talk therapy is just a little more icing on the cake.

I believe ... Read more>>

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