Sunday, February 20, 2011
GET (exercise) simply is not the appropriate treatment for ME, and can do serious harm
Kit wrote, 11:41 pm February 18, 2011:
Katherine, It is not simply that exercise as a cure for a neuro-immune illness “will not sit well with patients” if you mean by that it trivializes the disease. For people with ME/CFS, the body’s response to exercise changes drastically. Activity that once invigorated the body and was enjoyable, now can cause a worsening of symptoms.
In my case, light exercise leaves me in a near paralyzed state, in intense pain, and unable to think clearly. I meticulously followed a Graded Exercise Therapy program three years ago, as I was advised by my doctor.
My health worsened drastically as a result, and I have yet to regain the level of health I had prior to GET.
As a result, I have lost the ability to work, support myself financially, and take care of my basic needs.
Please see this graph to get an idea of how patients rate GET compared to many other treatments: Lowest of 106 treatments in effectiveness.
It simply is not the appropriate treatment for this illness, and can do serious harm.