Wednesday, February 9, 2011

How you can get involved in asking the US government for funding for XMRV research

By Toby Vokal:

CFSAC Spring Meeting (May)/Dates & Times TBA, Public Event

Time Thursday, May 12 · 9:00am - 11:30pm
Location Chronic Fatigue Syndrome Advisory Committee (CFSAC) or -FROM HOME!
200 Independence Avenue SW.

Created By Toby Vokal
More Info For people with ME/CFS, caretakers, family, friends, supporters, etc.

Everyone who can make the trip in person please do so. If not please send in your testimony: e-mail ,fax, send video, send photo's, phone, write letters, anything you can think of.

I will be asking for $150 million of the government's $32+ billion annual funding starting now. I hope everyone else will also!
(Personally I'm asking a large portion go to the WPI & XMRV research!)http://mcwpa.org/resources/research-funding-comparison/
It also costs the U.S. economy $25+ billion annually.

"But I hope you are not saying that C.F.S. patients are not as ill as H.I.V. patients. My H.I.V. patients for the most part are hale and hearty thanks to three decades of intense and excellent research and billions of dollars invested. Many of my C.F.S. patients, on the other hand, are terribly ill and unable to work or participate in the care of their families.

I split my clinical time between the two illnesses, and I can tell you if I had to choose between the two illnesses (in 2009) I would rather have H.I.V. But C.F.S., which impacts a million people in the United States alone, has had a small fraction of the research dollars directed towards it." - Nancy Klimas

Here is the CFSAC info:

(202) 690-7650 (Voice)
(202) 401-4005 (FAX)
cfsac@hhs.gov (Email)
Room 800, Hubert H. Humphrey Building (Mail)
200 Independence Avenue, S.W.
Washington, D.C. 20201

Christopher Snell - Chair, CFSAC: csnell@pacific.edu
Wanda Jones - Executive Secretary, CFSAC: Wanda.Jones@hhs.gov

Here is the NIH info:

(301)-496-4000 (Voice)
NIHinfo@od.nih.gov (Email)
National Institutes of Health (Mail)
9000 Rockville Pike
Bethesda, Maryland 20892

Anthony S. Fauci - Director, NIAID: afauci@niaid.nih.gov
Francis Collins - Director, NIH: collinsf@od.nih.gov


PLEASE FORWARD TO ALL OF YOUR CONTACTS, TOGETHER WE CAN AND WILL MAKE A DIFFERENCE!- THANK YOU!

Toby Vokal

3 comments:

sharon said...

Bravo Toby!! Get that info OUT there!

Thank you yet again Dr. Speedy. Love this blog and never miss reading it! Cheers- Sharon. WWW.mcwpa.org

Anonymous said...

We too will ask for money for research!

2bye said...

Thanks for the blog, much appreciated -Toby

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