By CFS Central:
Beyond-the-headlines reporting on Myalgic Encephalomyelitis/
Chronic Fatigue Syndrome and the retrovirus XMRV
Is it time for ME/CFS patients to become organized warriors? Is it time for ME/CFS patients to form an army, united against the common enemy, the government?
As I’ve said many times on this blog, when the HIV/AIDS patients started fighting back, that’s when they got results.
I see the CDC and many in the NIH as insidious bullies—why else would the NIH have appointed Dr. Myra McClure to the Center for Scientific Review Special Emphasis Panel (SEP), which approves National Institutes of Health grants for ME/CFS?
As soon as patients voiced their disapproval, she said she would resign.
The only way to get people and the government to do the right thing is to stand up to them. Every kid learns that when you stand up to bullies, they get afraid and back down.
For the government to be afraid of ME/CFS patients, it’s going to take a lot of organization and thousands of people rallying against them. It can be done. But until there is organized action, nothing will change.
If fifty thousand people from all over the world bombarded the NIH, ... Read more>>