I decline to unite with actions that in my opinion are not addressing the real issues.
Khaly suggests" "actually LISTENING to the patient community and advocating on their terms, rather than by telling them to conform to some advocacy organization’s terms."
Support the WPI, get the truth out to where it will be read, join the dots.... independent advocates are doing this, why are our organisations not joining in?
I dislike being patronized, and told to shut up and do what I'm told. Khaly's right, Heidi's right, IMHO.