When it comes to the CFIDS Association of America, patients Khaly Castle, Otis Quila and Liz Willow have reached critical mass.
They’ve just devised a “Petition to disassociate from CFIDS Association of America as our advocacy representative” because they believe that the CAA isn’t doing its job.
In one day, 205 patients have signed the petition, with a goal of one thousand signatures from all over the world.
Castle, Quila and Willow will present the petition at the May 2011 Chronic Fatigue Syndrome Advisory Committee meeting and ... Read more>>
PS: Anyone, anywhere, can sign. You don't have to be in the United States.